Peggy's Blog

This is Part III of a 3-part essay. Read Part I here and Part II here . Strays: Part III Late Spring 2008 Eight or nine months into treatment, as my heart made slow progress on Rifampin, I hunted around the Internet reading abstracts about bartonella and its related cardiac problems. It was hard to find anecdotal accounts of some of the rarer strains in humans. I began mining veterinary articles, which -- perhaps because the subjects were nonverbal -- included more elaborate description of the physical details of the subjects. These were the first articles I found that truly characterized cardiac bartonella. It was around that time that I found a near-description of my own cardiac symptoms in a veterinary article about twelve dogs with heart problems related to bartonella vinsonii subsp. berkhoffii, a strain of bartonella that had known transmission from animal to human. It had been recognized for some time in coyotes, with documented coyote-to-human transmission. On a parallel t...

This is Part II of a 3-part essay. Read part 1 here . Strays: Part II "If a lion could talk, we could not understand him" -- Ludwig Wittgenstein December 2004- Spring 2008 It is hard to describe the futility of explaining to people a lethal, fringe reality that it outside of their understanding. Wittgenstein had it right when he said "If a lion could talk, we could not understand him." Talking animals only exist in cartoons, and people would balk at the very idea, just as they balk at the idea of homebound, medically disenfranchised patients presenting their own stories. But Wittgenstein was getting at something deeper: language is borne of one's own physical reality, and a lion's words would always be near-misses to humans. Words are, by nature, a way of pinning down the gestalt of experience, but that process does not translate the life of a lion to the life of a human. This is why the Innuit need a hundred words for snow, and the Aztecs needed fe...

Strays Since May is Lyme Disease Awareness Month, I am posting in three parts a long essay I started before the Ice Storm about my infection with the Lyme coinfection bartonella (which is frequently tick-borne, and people are often infected with bartonella at the same time they get Lyme), and it's interaction with XMRV, ME/CFS, and cardiac issues. I have now been in treatment for both Lyme and bartonella for almost three years but have not been able to edit this essay until now. This is Part 1. September 2004 Finding the answer to my medical puzzle in Massachusetts was like trying to narrate a fabulist bestiary out of zoomorphic clouds. It was impossible to articulate. One week I was lying on my porch as raspberry-eating chipmunks squatted on rocks to grasp berries from the bushes, and the next week I was fighting for my life against a zoonotic pathogen that had entered my heart. My first drive down Ireland Street had seemed like jailbreak, as the side windows of my Volvo framed ...

Dear Friends, As some of you know, my health has worsened substantially over the past five years since I acquired a chronic bartonella infection that caused serious cardiac issues, and since I contracted chronic neurological Lyme on top of my already-severe case of ME/CFS and MCS. Just as things were starting to improve on proper meds for bartonella and Lyme, the worst Ice Storm in 30 years hit Massachusetts. Without power, I lost my heating system, well pump, lights, stairlift, and was thrown into a catastrophic state of emergency. I ended up in the hospital for 4 1/2 days. Hospital stays can be lethal for people with chemical sensitivities and ME/CFS. As ME writer Jodi Bassett states, "It is very common for severely affected patients to spend 2 months, 6 months, 12 months or even YEARS or longer recovering from a hospital trip. For example, some patients have not regained their previous very low-level of health 2 or 4 years after a trip to hospital. Some never do recover, a...