tag:blogger.com,1999:blog-38372827.post2106660941945429528..comments2023-09-19T03:46:20.508-07:00Comments on Peggy's Blog: Unknownnoreply@blogger.comBlogger4125tag:blogger.com,1999:blog-38372827.post-6251669736253589352009-10-26T21:15:12.633-07:002009-10-26T21:15:12.633-07:00Your onset sounds exactly like mine and I also too...Your onset sounds exactly like mine and I also took a cross-country trip soon after my acute onset in 1990. I felt like I might die of I don't know what several times across country and back.<br /><br />It gives me chills to hear you describe the dizziness, headache and flu-like illness I rode with in the car that month. <br /><br />Why are there so many of us who became ill just prior to and after 1990? I don't think it's coincidence.<br /><br />Thank you for writing this down in such exhausting detail.Dianahttps://www.blogger.com/profile/04753539452488719621noreply@blogger.comtag:blogger.com,1999:blog-38372827.post-85162637072963669602009-10-13T20:18:00.368-07:002009-10-13T20:18:00.368-07:00Thank you so much for this piece of writing. I...Thank you so much for this piece of writing. I've been following these new breakthroughs with rising anger at how much I, along with so many others, have lost to this disease. I tried to talk to my doctors about the similarities I saw between my CFS and HIV in 1992 and was shut down hard. One of the hardest things back then was having the daily experience of a brutal disease that others often said was all in my head. Over time that stigma has lessened somewhat, but still lingers, coming up at unexpected moments and leaving me feeling so judged. After years of active CFS followed by years of fibromyalgia I do not have daily symptoms any more. But I live with the harm wrecked on my body ever day and the fear that whatever lurks in my veins will rise up to take control again. I hope that this new research can give us all some relief and prevent others from going through what we have.Hollyhttps://www.blogger.com/profile/02047842475301176935noreply@blogger.comtag:blogger.com,1999:blog-38372827.post-4562022028644392982009-10-13T06:46:13.952-07:002009-10-13T06:46:13.952-07:00Thank you for this blog post. Your story is so mov...Thank you for this blog post. Your story is so moving, so filled with the personal costs experienced in the tsunami of ME. I readily identified with much of what you wrote; I fell ill quite suddenly in August of 1985 and went from a life of rock n roll dancing, concerts, fun, and university studies, to being a complete zombie with a strange, bruised feeling the length of my spine, no energy, fever of unknown origin, unable to stand up even long enough to take a shower. I've never regained my previous margin of energy. Another friend with it and I would sometimes comment to one another that we knew people with HIV who were healthier and more functional than we were, but we dared not say that to others. Like you, I was tested early, twice, for HIV, and was negative. I hid my failing health from employers, during the rare times I could work, until I was unable to work anymore at all. Fourteen years ago, I gave up trying to keep a job, and my husband and I live quite marginally on his sole salary as a municipal worker. A life without children, because I was too sick to have them. A life without travel, because travel is one of the most debilitating things. A life blown away when I was 30 yrs old and full of energy and dreams. A life now spent mostly in the walls of a rented duplex, managing small expenditures of energy in order to be able to leave my home for occasional forays into the outside world. A life punctuated by the pain of other peoples' judgments and ignorance. Thank you for what you have written, it is a jewel.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-38372827.post-82014384124068155622009-10-11T06:52:01.009-07:002009-10-11T06:52:01.009-07:00Wow. Simply wow.
This is the best commentary on ...Wow. Simply wow. <br /><br />This is the best commentary on HMRV I have read so far. I came down with ME in 1990 (sudden onset, like you) and have been bedridden or housebound for most of the past 19 years. Due to the illness, reading is very difficult for me, but this was worth the effort!<br /><br />Thank you for tying all the loose ends together so beautifully.Liz Willowhttps://www.blogger.com/profile/11224204717888883351noreply@blogger.com